Access to high-quality diagnostic and treatment for all individuals with primary ciliary dyskinesia (PCD) is a primary goal of the PCD Foundation. As we continue to learn more about PCD and develop better standards for identifying affected individuals and treating the consequences of inherited ciliary dysfunction, we plan to grow our network of ...

On a mission to improve the quality of life of those affected by PCD, and and ultimately, a cure for primary ciliary dyskinesia. Donate or volunteer today!

The Primary Ciliary Dyskinesia (PCD) Center specializes in diagnosing and treating adults with this rare genetic condition. The Center provides comprehensive multidisciplinary care for this serious condition that affects many organ systems.

The PCD Center at Connecticut Children’s & UConn Health provides comprehensive care to infants, children, teens and adults diagnosed with primary ciliary dyskinesia. We’re proud to be a joint center, and the only accredited PCD Clinical Research Network Center by the PCD Foundation in the state of Connecticut.

Primary ciliary dyskinesia (PCD) is an inherited disease caused by impaired function of cilia. An impaired ciliary function can cause frequent sinus, ear and lung infections, abnormal organ positioning and infertility.

Sep 28, 2021 · Primary ciliary dyskinesia (PCD) is a rare disorder caused by mutations in genes that control the structure and function of cilia. While there is no cure for PCD, early recognition and treatment can slow the progression of lung damage, …

Receive expert care from Columbia’s Primary Ciliary Dyskinesia PCD specialists to create a treatment approach tailored to your needs, helping you manage symptoms and live a fuller life.

May 7, 2024 · "Our center aims to improve awareness and provide specialized care to patients with PCD, ensuring early diagnosis and effective management." “Because primary ciliary dyskinesia affects multiple parts of the body, it requires expert collaborative multidisciplinary care,” explained Dr. Mark Metersky, Co-Director of the PCD Center at UConn Health.

UCSF's Pediatric Primary Ciliary Dyskinesia (PCD) Center specializes in caring for children born with this rare lung disorder. We offer screening and diagnosis for children of any age as well as comprehensive treatment plans aimed at slowing the disease's progression and supporting patients' normal growth and development.

In May, Connecticut Children’s, in partnership with UConn Health, launched its new Primary Ciliary Dyskinesia Center. Treating both pediatric and adult patients, it’s the only PCD Clinical Research Network Center in Connecticut accredited by the PCD Foundation and offers screening, genetic testing and multi-disciplinary treatment.