DLQI. It is also useful to consider the degree of pain, the number of flares, and the impact on daily life in hidradenitis suppurativa. The Cardiff Dermatology Life Quality Index (DLQI) questionnaire is often used. A Hidradenitis Suppurativa Burden of Disease (HSBOD) tool has been described but is not fully validated [5].

2021年6月6日 · HS has a profound impact on patients and their family life. Several factors, such as comorbidities, unemployment and HS severity, make this impact even more severe. The most widely used instrument to measure this impact is the dermatology-specific DLQI. We also identified six HS-specific health-related quality of life (HRQoL) instruments.

The instrument used for measuring QoL in this study was the Dermatology Life Quality Index (DLQI). Overall, patients reported a very large effect of HS on their QoL (mean DLQI: 13.2 ± 8.1 points), and 22% of the analyzed population even reported to consider the effect as …

The Dermatology Life Quality Index (DLQI) is a simple, self-administered and user-friendly validated questionnaire. The DLQI is designed to measure the health-related quality of life of adult patients suffering from a skin disease.

Several generic dermatological health-related quality of life (HRQoL) measures have been used in HS (21), but these cannot reflect the specific impairments of patients with HS. The most widely used measure is the Dermatology Life Quality Index (DLQI) (22).

2020年7月2日 · The objective of this study is to evaluate HRQoL in HS patients using multiple instruments (DLQI, DLQI-R, Skindex-16 and EQ-5D-5L) and to determine the convergent validity, known-groups validity and floor or ceiling effects of these tools.

This study provides high-quality evidence that among skin-specific outcomes, the DLQI, DLQI-R and Skindex-16, and among generic instruments, the EQ-5D-5L are suitable to be used in HS patients. In future research, we recommend the use of existing well-validated HRQoL tools instead of developing new …

2018年12月15日 · A survey of 114 patients referred to secondary care revealed an average Dermatology Life Quality Index (DLQI) score of 8·9, 18 demonstrating a moderate effect on quality of life. HS can have far-reaching social and economic consequences, affecting sexual health, 19 relationships and employment.

化脓性汗腺炎（Hidradenitis suppurativa，HS）是一种长期的、令人痛苦的皮肤病，涉及皮肤褶皱处的多个疼痛性疖，例如腋窝、腹股沟和生殖器区域，据估计每100人中就有1人患此疾病。

HS causes a high degree of morbidity, with the highest scores obtained for the level of pain caused by the disease. The mean DLQI score for HS was higher than for previously studied skin diseases, and correlated with disease intensity as expressed by lesions per month.