I have Chiari Malformation Type I (8mm herniation) and scoliosis/degenerative disc disease. I recently had a major flare 3 weeks ago (vertigo, panic, neck/occipital pain and pressure) and had to quit my job (which is giving me too much time to panic inside of my house alone all day oof).

2023年5月28日 · Just sharing my Chiari Surgery experience for anyone who is thinking about getting it done and wanting to hear about people's experiences/recovery. I (43 f) just had my Chiari Decompression Surgery with duroplasty and C1 laminectomy at Weill Cornell in NYC (with Dr. Steig) on Wed 5/24. I was discharged home this AM (Sat 5/27).

2024年6月2日 · Hi there. I just had surgery on the 13th and was diagnosed about 2 years ago. My Chiari was a little over 10mm. My symptoms weren’t terrible and I tried to manage them since being diagnosed. Unfortunately my Chiari got worse and was blocked my CSF posterior to brain stem and foramen. That was my determining factor.

2023年1月28日 · Others have what is known as Chiari 0 but because CSF is interupted or lessened there can be significant symptoms. Also slow csf leaks in the spinal dura caused from genetic connetive tissue disorder can essentially pull down the cerebellum causing simular symptoms and and often a diagnoses of Chiari Malformation.

2023年4月25日 · The Chiari diagnosis seems to be consistent with the majority of my symptoms, but what has me feeling crazy is everything going on with my vision and the tingling between my eyes. I’ve asked both doctors I’ve talked to so far if the Chiari could be causing that, and both of them said “it’s hard to say.”

2021年9月12日 · I know it probably seems overwhelming, but a chiari doesn't mean a lifetime of illness. A few years ago, before I was diagnosed and started taking control, my symptoms were debilitating. Now, they are an occasional annoyance in my otherwise chiari-free existence. Typically my symptoms are worse when I'm not taking good care of myself.

2019年3月5日 · I know some surgeons downplay Chiari if there’s no syrinx present, without giving too much consideration to your quality of life. It’s so hard missing work and personal events due to an “invisible” condition that few people can empathize with. …

2023年10月17日 · Husband has chiari. I met him when he was my personal trainer. He played paintball competitively, now he does triathlons, lift weights most days. Talk to you doctor. Start slow and progress. Listen to your body.

2023年1月26日 · Sorry to hear about all your symptoms. I had one surgery and have not experienced a "Chiari headache" since. Talk to your neuro of course but surgery may be for you. Ice the back of your head. gentle massage back there. When you feel better start stretching your neck gently and also jaw massage (TMJ is common symptom for Chiarians).

2022年11月8日 · It’s hard To say as Everyone’s headaches are different. I believe my triggers for chiari headaches are exercise, stress, concentrating, lifting, reading etc. i believe my biggest trigger is stress. So going to work or college everyday I have a headache. I also wake up with headaches and usually go to bed with one